WELCOME! THIS IS AN ONLINE SUPPORT GROUP FOR ALL THOSE AFFECTED BY MENINGIOMA BRAIN TUMORS

OUR MISSION

Meningioma Mommas is a 501 (c) (3) not-for-profit organization, which provides support and valuable resources to all those affected by meningioma brain tumors. We are dedicated to raising meningioma awareness and funding for meningioma specific research.

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NEWS & UPDATES

February 2010:

Just released--Meningiomas: A Comprehensive Text(Elsevier), which includes a chapter on the patient perspective by Liz Holzemer.

Meningioma Mommas celebrated its golden birthday on Feb. 7.
My has time flown!

Check it out!:

***FEEDING THE MIND & SOUL: It's More Than Just A Cookbook is a great way to satisfy your appetite and support MM at the same time! Check out our Mommas Merchandise page for all the yummy details and ordering info. All proceeds benefit Meningioma Mommas.

***Meningioima Mommas donated $20,000 to Dr. Elizabeth Claus' ongoing meningioma research. We have now funded $165,000 of meningioma specific research.

***Meningioma Mommas has partnered with Epilepsy Australia. If you or a loved one is affected by epilepsy like so many of our meningioma members, please register at Meet Minds Online to join our Everything Epilepsy forum.

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WELCOME! THIS IS AN ONLINE SUPPORT GROUP FOR ALL THOSE AFFECTED BY MENINGIOMA BRAIN TUMORS

Each of us has an inner voice. Mine spoke up very loudly 10 years ago and urged me to listen to my body's signals that something was awry. Something very awry. My inner voice urged me to ask my doctors why I was having frequent migraines. Why I heard swishing in my ears that sounded like waves crashing on the beach. Why I experienced deja vu sensations. Why I couldn't become pregnant. As a journalist, I had to continue my investigation and find the missing piece to this baffling story. My inner voice and gut instinct finally convinced doctors to order an MRI.

The MRI results delivered the most devastating news of my life — I had a meningioma brain tumor the size of a baseball pressed up against my right optic nerve, carotid artery and sinus cavity. The irony wasn't lost on me and my husband, a major league pitcher at the time. My neurosurgeon was stunned I'd even walked into his office or hadn't already slipped into a coma. He told my husband I was days away from slipping into a coma and dying. I was only 32 at the time. Read more about Liz's amazing story...