In just six years, Meningioma Mommas has impacted the lives of thousands of mommas, poppas, children and caregivers.
“My mom says that the mommas help her understand my brain tumor every day. Thank you.”
--Livi Jones, mother to a young daughter with a meningioma and epilepsy
"I will never forget the first night that I clicked onto the Meningioma Mommas' website at 2 a.m. I read a few threads and realized that these brain tumor survivors were expressing the same fear, frustration and depression that I experienced. I no longer feel alone or crazy when fear creeps into my sleep. I simply click onto the Meningioma Mommas' website and know that no matter what time of night it is, there is someone out there to listen to me. I now realize that 'normal is just a cycle on the washing machine.' The Meningioma Mommas--my new friends--walked into my life when I felt completely alone in the world. I now travel the 'journey of a lifetime' with a little help from my friends."
--Carol Vittoria; Cape Coral, FL
"Meningioma Mommas has been a place of comfort and joy for me ever since I was diagnosed on July 3, 2003. Despite being a Poppa and a minority in number, I have felt welcome and relied on Meningioma Mommas to get me through my diagnosis, surgery and recovery. I am not certain how I would have coped if I had not found this site."
--Stuart Gilkison; Madison, WI
"When I was sad before and after surgery, I always felt like those around me could not 'enter' my world. When I chat on the Meningimoa Mommas board, I go into a place filled with people who are the only ones that can enter the 'space' created by my tumor."
--Amy Lueen Cornish; Raleigh, NC
"Just knowing that all you thought about me during my hard times made my journey much easier! You have all minimized my worries and gave me new wings to fly!"
--Kristina Matuleviciute; Kaunas, Lithuania
"Meningimoa Mommas saved my life. From the moment I was diagnosed with 7 meningiomas, mommas reached out to me by sending cards of encouragement all the way from America!"
--Janet Ramsland; Brisbane, Australia
"These wonderful people have supported me through all the challenges associated with my brain tumor. I'm now committed to raising funds to benefit meninigimoa research. This is my way of giving back to something that has given me so much."
--Susie Foster; Odessa, FL
"How would you describe Meningioma Mommas in one word? Powerful, friendship, life changing, understanding, refuge, unity, comfort, relief, hope, awesome and family. Whether it's about the different therapies, what to expect, how to handle job situations, insurance issues or just how to cope, there is so much to learn. I cannot think of just one word to describe Meningioma Mommas. To me, it is NOT walking alone in my meningioma journey. It offers me hope, comfort, support and so much more!"
--Jeanne Tagawa; Walnut, CA
"On behalf of the Brain Science Foundation, I want to express our deepest gratitude for Meningioma Mommas and Poppas continued support of our initiatives, particularly with regard to the work of Dr. Elizabeth Claus. We are very appreciative of your membership's support in a disease that has so profoundly touched so many of our lives. I am personally thankful to be in collaboration with you and Meningioma Mommas."
--Steven Haley, Brain Science Foundation Founder and meningioma survivor
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Research:
Meningioma Mommas has donated $165,000 to meningioma specific research. We are currently funding Dr. Elizabeth Claus, M.D., PhD., Associate Professor, Yale University School of Medicine and Associate Neurosurgeon, Brigham and Women's Hospital as well as the Meningioma Lab at the University of California, San Francisco.